Wednesday, March 19, 2008

Good-bye patching, hello eye drops

We made our bi-monthly pilgrimage to Duke to see Whit's "boyfriend" yesterday. We're doing a "Flat Stanley" project for one of my mom's students, so we did a little photo documentation of our visit.

Here are the kids (with Stanley) outside.


One of the cool things about the Eye Center is they
have a "touchable art gallery" that is completely
child friendly. Depending on how late we're running,
we don't always have time to stop in.
We got lucky this time.
Here the kids are with an art quilt.
All of the artists represented in the gallery
have some sort of visual impairment.
Neat idea.

And outside the gallery, we ran into
the Easter Bunny! (Although
Brandon was sure to inform W that
it wasn't REALLY the Easter Bunny,
just someone in a costume.)

So, we had a lot of fun before the appt, but I'm still not sure what to think about how the appt itself went. I guess all the patching we've been doing was useless because her vision is still unequal between eyes. Boo on that. We've been really diligent lately with those patches, too.

So, now we're on to trying a new treatment. Instead of patching for two hours every day, we need to give W a drop of atropine in her eye every morning. It's dilating solution--I think the same stuff most people get when they go to the eye dr to get their eyes dilated.

I was excited about trying something new and am hopeful that this will help Whit's vision, but I wasn't prepared for how difficult it would be. Sweet little Whitney is and always has been very cooperative with all the treatments she has needed for her eyes, broken bones, etc. She laid right down and helped pull her eyelid so I could put the drop in. But neither of us understood what she was in for. Once that drop takes effect, she can't see. It drives her crazy. She told me four times today, "I'm blind in this eye mom." It was so heartbreaking to hear that.

The written info from Dr. Buckley says that her distance vision isn't affected, but her near vision will be blurred in that strong eye, forcing her to use the weak eye. You should've seen her trying to read books today, which happens to be a favorite activity of hers. She tries to close her dilated (left) eye or will even cover it up with her hand so she can just use her left eye. What a pain! I keep reminding myself that this was the first day of treatment and that she will hopefully adjust to this like she has to everything else she's had to go through in her short life. I hope. I hope. I hope.

We go back in two months, on May 20th. I am already counting down the days.

15 comments:

Anonymous said...

Give Whitney an expecially long hug for us and tell her we love her. Our thoughts and prayers
are with you.

G&G Hiatt

Destiny said...

I hope this treatment helps. She is one tough cookie!

Natalie said...

Whit is braver than me. I always blink right before the drop goes in, so it ends up running down my cheek. We will hope for the best though!

Ang said...

Oh, what a brave little sweetie. Right now I'm dealing with a mysterious Wyatt rash (they thought it was eczema, but it hasn't gone away and the ped doesn't know WHAT it is, so I'm taking Wyatt to a specialist)--and it's so frustrating when you try to do something to help your child but you don't know if it's working. You guys have truly been in it for the long haul with Whit. She's such a special kid.

Anonymous said...

Poor little girl. I hope the drops work. How long do her eyes stay dilated for?

carrie said...

whitney is absolutely adorable! and she is such a trooper. good luck, to both of you, over the next couple months. ...it's gotta work, it's gotta work, it's gotta work...
-bigger

Anonymous said...

Whit, this is Grandma Sweat - I hope you get used to the drops and you are a brave ballerina princess for going through everything you've gone through to help your eye be as strong as it can be. I hope you can adjust to the drops and be able to read books again because that is just about the most fun thing in the world!

Love yoU!
Grandma Sweat

Sandy said...

Poor thing - what a trooper! Hopefully this new treatment will do the trick!

andrea said...

Quick update:

Amy-her eye stays dilated all day, so she will be dealing with this crazy vision for the next 2 months.

The good news is she seems to be getting used to it. She still walks around winking half the day, but at least it isn't ALL day anymore.

Steph Kjelstrom said...

What an ordeal for a 3 (or 4) year old to go through! At least she is cooperative, Jeffrey would kick and scream through the whole thing.

Joey/Denny/Emma said...

Hope Whitney is doing better with the eye drops. She has really been through a lot for a little one. Certainly hope this will help her out and not be too much of a trauma for her. Hope your family had a happy Easter!

Laurie said...

Whitney sounds like an absolute trooper - and so do you!! I'm sorry to hear about the eye frustrations. I really hope the eye drops get easier and that they help. She is a tough cookie being willing to even take them!

Laurie said...
This comment has been removed by the author.
Laura said...

Kids are so amazing! And you are doing an amazing job helping her!!

Unknown said...

Funny, we had to do a Flat Stanley project over spring break. I'm working on that post. Too cute